The FoG

Foundation Glycosylation

CDG Hub is hiring Scientific Writers!

CDG Hub is hiring two remote, part-time Scientific Writers through the Canada Summer Jobs (CSJ) Program!

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Duncan Webster

Father of Maria Webster

Foundation Glycosylation Trustee

"The 1st World Conference on Congenital Disorders of Glycosylation for Families and Professionals: a booming story of sugar trees"

September 1-2, 2013, Barcelona


LINK TO VIDEO


RARE DISEASE DAY 2025: February 28th

Over 6000 rare diseases are characterised by a broad diversity of disorders and symptoms. The fact that there are often no existing effective cures adds to the high level of pain and suffering endured by patients and their families.

 

Rare Disease Day highlights opportunities to advocate for human rights at local, national, and international levels as we work towards a more inclusive society. It raises awareness for the 300 million people living with rare diseases around the world for whom we strive to achieve equitable access to diagnosis, treatment, health and social care, and social opportunity.

 

Rare Disease Day is a great example of how progress continues to be made. In 2008, events took place in just 18 countries; events are now held in over 100 countries.

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CONTACT

Foundation Glycosylation

Saint John Regional Hospital Foundation

Level One, Saint John Regional Hospital

400 University Avenue

P.O. Box 2100

Saint John, New Brunswick, Canada

E2L 4L2

DONATE NOW

The FoG, a local not-for-profit, supports research on the development of therapies targeting Congenital Disorders of Glycosylation (CDG), helps raise awareness of the disorder, and advocates for individuals living with these rare enzyme deficiencies.